BACKGROUND

As many of you know, Jodie was born with congenital heart defects and had surgery at 10 days and 18 months old. She did ok throughout childhood, but had to be on some medications through high school, then another was added in college. Jodie went on to grad school, and unexpectedly required a valve replacement in 2007. It turned out she was in the early stages of heart failure, but only found out after the procedure. She needed to get a pacemaker since her heart stopped beating on its own, and then a few months later upgraded to a pacemaker/ defibrillator due to low heart function. In 2008, Jodie was told that she would eventually need a heart transplant, and that the doctor predicted it to be necessary within the next 5 years.

In the 12+ years since then, Jodie was upgraded to a bi-ventricular pacemaker/defibrillator which helped her feel better but didn't improve her numbers, had it replaced two more times due to the battery almost running out (normal process), was put on a new medication that helped her feel much better but still didn't improve the numbers. Then in April of 2019 things started to get interesting. Jodie went into an atrial flutter and after 3 weeks, had to be cardioverted (think being shocked with paddles, but more controlled and while under anesthesia) to get her rhythm back to normal. Then over the summer she started feeling more and more tired, and having slightly worse symptoms. Jodie had some tests in August that showed things were worse, and the doctor told us in October that we would need to check back in early 2020 to see how things are. After having those tests, its clear that Jodie needs to have a heart transplant.


WHY DID WE START THIS BLOG?

Jodie and Peter decided to keep this blog for a few reasons. First, as a way to keep our friends and family up to date. Second, as a way to share how we are doing and what we are going through (and potentially what we need). Third, as a way to document this journey.

We have learned that we want the people around us, and those who care about us, to know what is going on, but don't always have the energy to talk about it over and over. We will be sharing was is "on our hearts" as we go through this journey. We welcome you to check in as often as you like. Thoughts and prayers are much appreciated. You are always welcome to reach out individually, but please feel free to leave comments on our posts and we will try to respond to everyone when we can. We are also planning to use this platform to share news when we don't have time or energy to send to everyone.

Some of our posts may be more emotional, and some may be about more mundane things. Once we get to step 4, it could take anywhere between 1 day and a year or more to reach step 5. We have no way to know. As we are in that waiting period, we do know that one of the things that will be helpful to us will be to keep busy - board game nights, movies, etc. If you are nearby, please do reach out. While Jodie can't be doing anything too strenuous right now, we still want to connect with people. If things come up that we need or could use help on, we may post it here, or reach out specifically to those who have let us know they want to help.

Thank you for walking with us through this journey as we share what is on our hearts. Please check back for updates. We will add information as it becomes available and as we go through the process ahead.

God bless,
Jodie & Peter Elliott

Monday, April 13, 2020

Happy Easter

Thank you to both Susan's who gave me compression socks and to others who decided to contribute to my growing sock collection. 

We had planned to write a post on Easter, but the day got away from us with all the family video visits.

Easter morning we woke up, I made deviled eggs for breakfast, and we streamed church.  The message this Easter has been quite profound for us, in addition to it also being passover.  Thinking about Passover in the time of a pandemic gives a new meanng and understanding to what people may have been feeling back then.  Thinking about the trials Jesus faced, and how faith was needed to get to the miracle of his rising hits close to home.  When looking at life these past weeks, there have been so many trials, and we have had to have faith that things would turn out. While this was a very different Easter given we are all in isolation, in a lot of ways I feel more much more connected to the Ressurection and have been able to really take in some of the context in ways I have not before. I think that this journey of trials has been one that really could have tested my faith, and I am grateful to feel that instead it has strengthened it.

Until yesterday, I don't think Peter and I had really used video chat with our friends and family too much.  It was nice to be able to see Craig, Alex, Amelia and Joseph  playing in their yard, and get a video tour of Shaun's new house and see Calla, Jake, Abby and Gabby.  Peter's family did a zoom call, which was fun.  I also got to video chat my dad.  It is definitely not the Easter I'm used to, but it did feel more connected than I thought it might.

Today we are trying to have more of a "normal" day.  I played around with a mask pattern yesterday, and after a prototype that wasn't exactly what I wanted figured out a good pattern and way to make them that should be fairly quick. I cut out a handful of masks for specific people that I'm planning to sew today.  Since I'm a quilter, even though I donated bins of fabric to my church earlier this year, I still have a bunch to work with.  I am using the cotton as the outer layers, and then doing an inner layer of the flannel as more of a filter layer.  Making these helps me feel like I'm doing my part. They may not be able to use them in the hospital, but i'm planning to make some to gift to the nurses that took care of me in the hospital.  I won't have those done by my appointment tomorrow, but I think by next week I should have enough that I can send it up to the floor when I have my appointment. 

1 comment:

  1. Hi Jodie and Peter! So glad I could help! Keep up the great recovery progress Jodie, you're doing a fantastic job. Stay safe and have a wonderful day. Susan J.

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