BACKGROUND

As many of you know, Jodie was born with congenital heart defects and had surgery at 10 days and 18 months old. She did ok throughout childhood, but had to be on some medications through high school, then another was added in college. Jodie went on to grad school, and unexpectedly required a valve replacement in 2007. It turned out she was in the early stages of heart failure, but only found out after the procedure. She needed to get a pacemaker since her heart stopped beating on its own, and then a few months later upgraded to a pacemaker/ defibrillator due to low heart function. In 2008, Jodie was told that she would eventually need a heart transplant, and that the doctor predicted it to be necessary within the next 5 years.

In the 12+ years since then, Jodie was upgraded to a bi-ventricular pacemaker/defibrillator which helped her feel better but didn't improve her numbers, had it replaced two more times due to the battery almost running out (normal process), was put on a new medication that helped her feel much better but still didn't improve the numbers. Then in April of 2019 things started to get interesting. Jodie went into an atrial flutter and after 3 weeks, had to be cardioverted (think being shocked with paddles, but more controlled and while under anesthesia) to get her rhythm back to normal. Then over the summer she started feeling more and more tired, and having slightly worse symptoms. Jodie had some tests in August that showed things were worse, and the doctor told us in October that we would need to check back in early 2020 to see how things are. After having those tests, its clear that Jodie needs to have a heart transplant.


WHY DID WE START THIS BLOG?

Jodie and Peter decided to keep this blog for a few reasons. First, as a way to keep our friends and family up to date. Second, as a way to share how we are doing and what we are going through (and potentially what we need). Third, as a way to document this journey.

We have learned that we want the people around us, and those who care about us, to know what is going on, but don't always have the energy to talk about it over and over. We will be sharing was is "on our hearts" as we go through this journey. We welcome you to check in as often as you like. Thoughts and prayers are much appreciated. You are always welcome to reach out individually, but please feel free to leave comments on our posts and we will try to respond to everyone when we can. We are also planning to use this platform to share news when we don't have time or energy to send to everyone.

Some of our posts may be more emotional, and some may be about more mundane things. Once we get to step 4, it could take anywhere between 1 day and a year or more to reach step 5. We have no way to know. As we are in that waiting period, we do know that one of the things that will be helpful to us will be to keep busy - board game nights, movies, etc. If you are nearby, please do reach out. While Jodie can't be doing anything too strenuous right now, we still want to connect with people. If things come up that we need or could use help on, we may post it here, or reach out specifically to those who have let us know they want to help.

Thank you for walking with us through this journey as we share what is on our hearts. Please check back for updates. We will add information as it becomes available and as we go through the process ahead.

God bless,
Jodie & Peter Elliott

Sunday, February 7, 2021

Revelations

 It has been a busy week.  We got our first SunBasket, and so far are really liking it.  We had a morrocan chicken dish the first night that had great flavor, a fire roasted tomato shrimp with polenta dish the second, and a belizian chicken stew over coconut rice the third.  We had planned to make our fourth dish on Thursday, but didn't have an oven to cook it with. 


I think I mentioned that after Thanksgiving our dishwasher broke.  We needed to replace it quick, and had already been thinking about replacing our fridge.  It ended up being much more economical to switch from white to stainless steel for everything.  Peter installed the dishwasher after buying it in store, and we had the fridge and microwave delivered last week.  The oven was dented, so they instead delivered it Thursday . . . but had installation for Saturday.  This derailed our plans a little, but we made it work.  The new oven is great, and we enjoyed our vegetarian dish of quinoa with chickpeas, carrots, and onions.  Price wise 4 meals for the two of us is about comparable to two meals of take out, so although it is a little more than what we usually spend in groceries, we are finding it much easier to cook when there is a set plan and recipe already.  Plus, the meal plan we chose has meals that all come out to 600 calories, so it is helping with our portions. 


I've gotten to the pool 3 times this week, which is exciting.  I've done a mix of walking with exercises at the end and swimming.  Back stroke seems to be the best stroke for me thus far.  I had a revelation today.  I had finished the length of the lane, and was catching my breathe at the end.  My breathing was heavy and my heart was pumping, so my immediate thought was I better not push it.  I realized that this thought was born out of 12 years of living in heart failure.  It used to be unsafe for me to push myself, and in some ways I think I've developed an aversion to actual exercise that pushes my limits.  Thinking on it, the few times I have had to keep pushing since transplant, on two hikes that were longer and/or more elevation than expected, I did just fine.  And I was not wiped out the next day.  I made myself keep swimming, and I was a little tired.  But I don't really remember that this is an ok feeling.  It has been over a decade since I could work to feeling out of breathe and tired and not have some negative consequence later.  I think part of my problem with not having lost weight is that I've been going way too easy on myself.  I was using that I was healing as a reason, but its been over 10 months.  I keep falling back on old thought patterns that aren't true anymore.  So I'm going to have to start pushing.  Which is terrifying in a lot of ways.  But also, I still weigh 30lbs more than I should, my labs are starting to reflect that I'm overweight, I'm getting stretch marks, and I'm uncomfortable.  If I don't do something now, when will I?  Yes, my knees hurt and sometimes its hard to move.  But the less I move, the worse it gets.  I am going to have to work through the discomfort. 


I've decided that at my one year appointment, if I'm not seeing a difference from my swimming, I'm going to ask for another referral to cardiac rehab and try a different facility.  I'm also getting an antibody test within the next few weeks, and if I have them, it means the vaccine works and I'm protected, so I would feel much more comfortable about what I'm doing.  I also figure that I'm going to need to up my exercise days to more than 3, but if having the puppy makes me take Bosun on walks with Stella and Peter, than I'd be increasing my steps and that could be enough. Very much looking forward to meeting our little guy.  He went to the vet this week and the vet mentioned how fearless and friendly he is.  Looks like we picked a great one!

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