BACKGROUND

As many of you know, Jodie was born with congenital heart defects and had surgery at 10 days and 18 months old. She did ok throughout childhood, but had to be on some medications through high school, then another was added in college. Jodie went on to grad school, and unexpectedly required a valve replacement in 2007. It turned out she was in the early stages of heart failure, but only found out after the procedure. She needed to get a pacemaker since her heart stopped beating on its own, and then a few months later upgraded to a pacemaker/ defibrillator due to low heart function. In 2008, Jodie was told that she would eventually need a heart transplant, and that the doctor predicted it to be necessary within the next 5 years.

In the 12+ years since then, Jodie was upgraded to a bi-ventricular pacemaker/defibrillator which helped her feel better but didn't improve her numbers, had it replaced two more times due to the battery almost running out (normal process), was put on a new medication that helped her feel much better but still didn't improve the numbers. Then in April of 2019 things started to get interesting. Jodie went into an atrial flutter and after 3 weeks, had to be cardioverted (think being shocked with paddles, but more controlled and while under anesthesia) to get her rhythm back to normal. Then over the summer she started feeling more and more tired, and having slightly worse symptoms. Jodie had some tests in August that showed things were worse, and the doctor told us in October that we would need to check back in early 2020 to see how things are. After having those tests, its clear that Jodie needs to have a heart transplant.


WHY DID WE START THIS BLOG?

Jodie and Peter decided to keep this blog for a few reasons. First, as a way to keep our friends and family up to date. Second, as a way to share how we are doing and what we are going through (and potentially what we need). Third, as a way to document this journey.

We have learned that we want the people around us, and those who care about us, to know what is going on, but don't always have the energy to talk about it over and over. We will be sharing was is "on our hearts" as we go through this journey. We welcome you to check in as often as you like. Thoughts and prayers are much appreciated. You are always welcome to reach out individually, but please feel free to leave comments on our posts and we will try to respond to everyone when we can. We are also planning to use this platform to share news when we don't have time or energy to send to everyone.

Some of our posts may be more emotional, and some may be about more mundane things. Once we get to step 4, it could take anywhere between 1 day and a year or more to reach step 5. We have no way to know. As we are in that waiting period, we do know that one of the things that will be helpful to us will be to keep busy - board game nights, movies, etc. If you are nearby, please do reach out. While Jodie can't be doing anything too strenuous right now, we still want to connect with people. If things come up that we need or could use help on, we may post it here, or reach out specifically to those who have let us know they want to help.

Thank you for walking with us through this journey as we share what is on our hearts. Please check back for updates. We will add information as it becomes available and as we go through the process ahead.

God bless,
Jodie & Peter Elliott

Tuesday, March 23, 2021

Happy 1st Heartiversary

Jodie: My transplant was on a Monday last year. Tuesday is my clinic day, not  because it has to be, but because it’s the day that has worked best for us. When it was time to schedule my 1 year follow up, since the 23rd landed on a Tuesday, I decided it was somewhat appropriate to have the appointment exactly a year later.

Peter: This past year has been a long one. It’s amazing what can happen in a year, and we’re so blessed to have made it to this milestone in Jodie’s recovery. She has been so strong and has improved so much. 

Jodie: We have both been contemplative the last few weeks. Sunday was hard, realizing that if we were going by days of the week, it was one of our hardest days. Yesterday was even tougher, being the actual anniversary of the night before. We both worked, took Bosun to puppy class, and on the way home reflected. Neither of us slept much that night a year ago. I had every worst case scenario running through my mind, and was terrified I’d never wake up. And knew if I did I’d have to be all alone in the hospital.

Peter: Last year today was rough... I had stayed up all night waiting with Jodie before she was taken back to surgery, got a couple hours of fitful sleep in the waiting area, and waited around all day until receiving news. The nurses and staff were kind enough to help us stretch some of the ‘new’ COVID restrictions and rules, since we knew that once she made it through surgery, due to the  restrictions I could not be there when she woke up in with her new heart.

Jodie: With all the memories heavy on our minds, it’s also made the reality of today a little sweeter. We found a pet sitter for Bosun and dropped him off on our way a little after 7am. We parked near the main hospital entrance and walked in, just like last year on March 7th. I thought it made sense to take the same picture going in.
https://drive.google.com/uc?export=view&id=19G__IuWgbiXcEDEOOzN7WzrmrN9IVTQG

Walking through the halls and getting to clinic, there are so many memories. Once we got to clinic, it turns out that the same doctor who did my first clinic visit post-transplant was there today. We had a good check in, and decided that I have 6 months to try to get my weight more under control before we try anything else. Then I got an X-ray, and we made our way over to the cath lab. On the way this sign caught my eye, with the tag line “a year like no other.” I couldn’t help taking a photo with it.
https://drive.google.com/uc?export=view&id=11i57aMsn9JLjA15WFBISOosSOKMa7BBS

Peter: After over a year of going back and forth from the hospital for Jodie, I would have hoped some of it would become routine... Instead it feels like I'm regressing, getting flashbacks to days spent fretting and worrying and praying - alone in the waiting rooms. Days where I spent every second waiting for a text or call with an update. Today was especially difficult, feeling refective about a year ago bleeding over to my feelings now. I was so anxious, and felt so overwhelmed. I'm so glad that I have Jodie to keep me levelheaded. I'm so blessed to have her in my life.

Jodie: If I’m being honest, it wasn’t much easier for me. We got to the cath lab before 10 and I was ready to go back at 11. For the first time, the drs didn’t talk me through what they were doing, and the meds made me so sleepy I didn’t speak up. My anxiety was through the roof. Then after the two hours laying flat post procedure, we still had to go to echo since they hadn’t come to us. I almost said no - I was still keyed up, tired, grumpy, hungry. I relented as it was on the same floor, but really couldn’t wait to get home. We finally left after 4pm. 

We got home and Peter just let me relax. He made dinner, then headed out to get bosun. Peter then surprised me with a red velvet cake. We both had a celebratory piece, and are having a quiet night with sleepy pups and purring cats. Last year I couldn’t picture what a year later would look like. I don’t know what another year will bring either, but I am hopeful.

Peter: It has been a difficult time, but we persevered. We can’t wait to celebrate future heart-birthdays with our family and friends. Thank you all for your prayers and support from afar this year. God bless.

1 comment:

  1. One year! Incredible! I just adore how you both wrote this post. Going back and forth between Jodie's words and Peter's is remarkable. You two are so beautiful together!

    Someone taught me once that God appears in our lives in eruption moments, erosion moments, and excavation moments (e.g. daily disciplines of prayer & reading the Bible). This past year was definitely an erosion moment for you. And like the Israelites never really knew that God was with them when they were wandering in the wilderness for 40 years, in highlight, it is so obvious that God led them (even carried them) the entire way. I give thanks to God that God has carried you through the past year too.

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